I found this over at Kidz. I think all parents who have a child with a disability need to read this!!
Some things just never get easier
I have logged back in to write today as we come to the end of lockdown 3.0. I just saw in my unpublished posts my thoughts about lockdown 1.0. Hmmm. I might publish that one day! Today's topic feels like something I have written about before. Over the past few weeks, Ryley has been undergoing assessments. These assessments are necessary in order for us to receive adequate funding under the NDIS. Long story short, Ryley's last NDIS plan has failed to provide the funding he needs in order to participate fully in the things we had planned for his transition out of school. The whole process has felt a bit messy. It started with me not being listened to. This is despite my strong, knowledgeable-of-systems-and guidelines voice. No blaming or shaming here. It just is as it is. However, for those that know me well, know that when you try and 'quieten' my voice, I will only speak louder. Especially when it comes to advocating and speaking for those that can't. As expec
Just wanted I needed to read today! Thank you for the reminder.ReplyDelete
Ahh... so that exaplins why I have been drinking so much coffee lately. I must have had this in mind. LOL.ReplyDelete
If only it were that easy. It's flippin hard to "charge the batteries" when you are mentally, physically and emotionally exhausted...perhaps not if you are GOD though...which i am definitely NOT...LOL!! I guess that means i am of "no good to anybody" then!!ReplyDelete
I appreciate the sentiment though.
I hope your house is feeling better by now.
LOL Liv. Yeah I know. I am pretty much no good to anybody right now too. I think *touch wood* we are starting to get better.ReplyDelete
Hope you guys are feeling better too. And we really need to work on that recharging of batteries thing huh?
E. LOL. Coffee is the only thing that keeps me going. If I don't drink it I fall in a heap!!
Hannah- Hope you are having a good day today.
I think sometimes as parents we all need that reminder that it is ok to have a break. Or to wish for one LOL.
Enough of my lovely quotes anyway. Next post will be about snow peas LOL.