A Blog About a Bloke-Living with WHS

Yes Yes. It is an extremely rare event. But last night we had our 2ND night out together for the entire year. Oh imagine our excitement. Actually. We were extremely excited, because we were attending the Official Launch of 4p Aussie Kidz. You can go here: http://4paussiekidz.org.au/  to find out more. Or you can visit the blog here: http://ellieedayoung.blogspot.com/  to meet Ellie and her parents Mel and Luke. It was a great night, made greater because we won the slide we wanted in the auction. Mel and Luke did a great job and it is great to see their dreams coming true. I didn't get too many photos because my camera sux (I really need a fancy one). But the lovely Liv had her awesome camera and took a couple of us and our poster boys. Liv took a better photo than this (which is my dodgy one), but for some reason I can't get it on the blog. PS. Conference in less than 3 weeks..EEK!!

So, last year I posted during Carer's week and posed the question: Who cares about the Carer's? I received lots of emails and messages in response to it. Here in Victoria we are currently 'celebrating' Carer's week. Which basically means we all give ourselves a pat on the back or a 'hi-five' for being so wonderful. *Ahem* I think I found one event happening here in Ballarat. And that was it. There has hardly been any mention of it. Anywhere. So my questions remains. Except this time I am adding a word or two to it: Who the bloody hell cares about Carer's? Well, the government does of course. We save them 40.3 billion every single year by taking care of our loved ones ourselves. They do gives us $110 a fortnight in return to help us out. So WOW. That is awesome. Many people will use their words and express that Carer's do an amazing job. Uh-huh. Yet that is usually the extent of their support. A few words dropped here and there. Ok. Cool

Those that know me very very very well, will know that this is my absolute favourite movie of all time (and Wuthering Heights too). I pretty much know the movie word for word. Anyhoo. I have pretty much been waiting for years for it to come out on DVD as my well loved VCR copy really was just not the same. So given that it came out today, guess what I went out and bought?? Braeden is currently glued to it. Ryley never really liked it that much (how disappointed was I??!). So now all my hopes are focussed on Braeden. He better love it as much as me. Bad luck I guess if he doesn't. Because guess what we are watching on repeat from now on??? There are SO many great lines in the movie: "Cheaters never prosper" (why thankyou for your wise words Zazu) "Hakuna Matata-it means no worries, for the rest of your days" (Oh if only you were right Timon and Pumbaa). "Hippity Hop all the way to the birdy boiler" (Oh you hyenas...gimme one of those boil

I have been thinking about this question lately (despite my lack of blogging). I don't know if I have ever written a post specifically on why I blog. My blog will never be one of the 'popular' blogs. I doubt I will ever have 1000 followers (I doubt I will ever have 100). And that is mostly because I work nearly fulltime and the only real time I have to write is at the end of the day, and to be honest, I would rather just watch tv, go for a run, or read a book. I don't have the time to dedicate to it. Though sometimes I wish I did. So who should read this blog? Well. Anyone. I am tipping that most people who read the blog have a child or adult with Wolf-Hirschhorn Syndrome. Then there might be some other readers out there who have a child with a disability and sometimes like to read my thoughts on disability related stuff. Then I guess there are people who know me in real life and like to stalk keep up with me. And I guess occasionally my friends and family memb

First post for October and we are nearly in the middle of it. Eek. According to my statcounter there are still the occasional reader who pops by. So thanks for that! I just don't have the time to blog right now. Which I hate of course. But you all know the reason why I am a little absent from the blogging world right now, so I won't harp on about it. So what's been happening in our neck of the woods? Well, lot's of stuff. It has been the final week of school hols this week, and I got to work the whole week. At first I thought "what a bonus, I don't have to do anything", but that very quickly changed to "geez I wish I could stay home". Sigh. Grass is always bloody greener isn't it?? Ryley and Braeden had two of their cousins stay and all the kids had a great time! We went out for tea to Pizza Hut, because really, 3 hungry boys (Ryley-not quite so hungry for pizza) and all you can eat, just go hand in hand I believe. David took al