Blogging 101-how do I do this again?

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Sometimes I wander back into this blog and check out a few of my past posts. I read some of the wonderful blogs I used to follow regularly and contemplate writing here again. 

So many things have changed in my life over the past few years. 

The teenage years are...difficult. 
I feel very alone in this raising a teenage boy with WHS thing. There is no one really to answer my questions, and I spend most of my days feeling as though my son hates me. I know he doesn't, but this is tough. Way tougher than I thought it would be. 

So here I am. 
Tracking my journey again.
It may help others. 
It may help me.
But I feel as though there is so little support out there for parents who have teenagers with WHS...or any other disability for that matter. 
I feel compelled to write.

So, I will eventually update this blog so it looks a bit fancier and with the times again (ha!).

But this is me. Raw. Unedited. Changed.


  1. Hi there i would love to get in touch with daughter who is now 21months old...has some incredible health issues and has a 3 megabase deletion of 4p.16.3
    We are booked to see a geneticist at the RCH in July....based on my research alone and everything she has endured to date indicates WHS
    I am in Ballarat Victoria and I'm pretty sure I read that you also are and I would love to talk with you further.
    I am on Facebook as
    My email is
    And my phone number is
    Thank you so much.

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  6. I can only imagine the additional layers of complexity that come with raising a teenage boy with WHS. It takes incredible strength and resilience to face the unique challenges that come your way. Feeling alone in such situations is entirely valid, but I want to encourage you not to hesitate in seeking support. Have you considered exploring resources like NDIS plan managers in Victoria? They might offer valuable guidance and assistance tailored to your specific needs.


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