Blogging 101-how do I do this again?
So many things have changed in my life over the past few years.
The teenage years are...difficult.
I feel very alone in this raising a teenage boy with WHS thing. There is no one really to answer my questions, and I spend most of my days feeling as though my son hates me. I know he doesn't, but this is tough. Way tougher than I thought it would be.
So here I am.
Tracking my journey again.
It may help others.
It may help me.
But I feel as though there is so little support out there for parents who have teenagers with WHS...or any other disability for that matter.
I feel compelled to write.
So, I will eventually update this blog so it looks a bit fancier and with the times again (ha!).
But this is me. Raw. Unedited. Changed.
Hi there i would love to get in touch with you....my daughter who is now 21months old...has some incredible health issues and has a 3 megabase deletion of 4p.16.3ReplyDelete
We are booked to see a geneticist at the RCH in July....based on my research alone and everything she has endured to date indicates WHS
I am in Ballarat Victoria and I'm pretty sure I read that you also are and I would love to talk with you further.
I am on Facebook as
My email is email@example.com
And my phone number is
Thank you so much.
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