More pics


Here are a couple of pictures of the boys taken yesterday. Ryley is pulling his 'funny face' and Braeden is making sure his mate Keto Meerkat is in the picture!
We have finally had some heat here in our part of Australia so it has been quite a shock to the system!
Braeden actually has a pair of jocks on over his nappy (which you can't see) because he has decided he wants to start going to the toilet. I think we are a loooong way off him being toilet trained, but hey if he thinks he is ready himself, then he must be getting close to it...??!! Ryley seems very keen to give the toileting thing a try too, so we are going to attempt to train him too. We figure that if he sees his brother doing it, he might be more inclined to try himself.
Ryley has had some pretty nasty seizures this weekend and spent a fair amount of time feeling crap. He seemed very happy this morning though as he went off to school, despite having been up since 5:30am.
I hope the warm weather sticks around. It is really nice being able to do things outside at night when the kids are in bed. It is so relaxing!


Comments

  1. TheThingsIdTellYouNovember 2, 2009 at 2:17 PM

    There must be something in the air. Sammy's decided it's time too. Literally the day he turned 2 he started taking himself to the toilet.

    ReplyDelete
  2. julesNovember 2, 2009 at 8:31 PM

    Hey if they think they are ready give it a go.Even if they just sit on the potty after a nappy change it's a start.We are also loving the nice weather.Hope Mr Ryley doesnt have too many more big seizures for him.Big hugs xxxx

    ReplyDelete

Post a Comment

Agree? Disagree? Love to hear your thoughts! Thanks for stopping by!

Popular posts from this blog

Some things just never get easier

I have logged back in to write today as we come to the end of lockdown 3.0. I just saw in my unpublished posts my thoughts about lockdown 1.0. Hmmm. I might publish that one day!  Today's topic feels like something I have written about before. Over the past few weeks, Ryley has been undergoing assessments. These assessments are necessary in order for us to receive adequate funding under the NDIS.  Long story short, Ryley's last NDIS plan has failed to provide the funding he needs in order to participate fully in the things we had planned for his transition out of school.  The whole process has felt a bit messy.  It started with me not being listened to. This is despite my strong, knowledgeable-of-systems-and guidelines voice. No blaming or shaming here. It just is as it is.  However, for those that know me well, know that when you try and 'quieten' my voice, I will only speak louder. Especially when it comes to advocating and speaking for those that can't.  As expec
Keep reading

Blogging 101-how do I do this again?

Image
Sometimes I wander back into this blog and check out a few of my past posts. I read some of the wonderful blogs I used to follow regularly and contemplate writing here again.  So many things have changed in my life over the past few years.  The teenage years are...difficult.  I feel very alone in this raising a teenage boy with WHS thing. There is no one really to answer my questions, and I spend most of my days feeling as though my son hates me. I know he doesn't, but this is tough. Way tougher than I thought it would be.  So here I am.  Tracking my journey again. It may help others.  It may help me. But I feel as though there is so little support out there for parents who have teenagers with WHS...or any other disability for that matter.  I feel compelled to write. So, I will eventually update this blog so it looks a bit fancier and with the times again (ha!). But this is me. Raw. Unedited. Changed.
Keep reading

Defeated...for now

Image
At the moment, I am just surviving. I should have known it was only a matter of time before I fell over again and needed some help to get back up. Stress. Anxiety. Exhaustion. They seem to come hand in hand don't they? And I should have really just taken a moment when I felt the stress building up. I should have just said 'hey, I need a day or two to myself'. But I didn't. And here I am. I am ok by the way. Just in between sick kids, a sick me, work, a zillion extra appointments to somehow squeeze into my already full days...well...it all just became a bit much. Cue: Me in tears sitting in my Managers office. Thank goodness I have a supportive and wonderful workplace. She saw I needed time out and told me to take it. The worst bit of it all is the stupid anxiety that came back. For those that suffer from anxiety (whether it be a sometimes thing like me, or an ongoing disorder), it truly sucks the life out of you. My body just completely went into adre
Keep reading