For sale: Two pair of shoes. Come and try them. You will probably give them back after 5 minutes. But
please. Come and try them for a moment. Here’s what you get when you step into our shoes: We have a 16 year old son who does not sleep. By this, I don’t
mean, he wakes once or twice to go to the toilet or get a drink. I don’t mean
he stays up all hours on his device chatting to his mates or girlfriend. By
this, I mean, he literally gets up every 15 minutes to wander around the house.
Sometimes he will go back to sleep for 30 minutes. Occasionally it is a full 60
minutes before he gets up again. My husband and I take it turns to redirect him
back to bed or to listen as he wanders around. We listen to make sure he doesn’t
go outside into the freezing cold, where, if we didn’t notice, he would probably
die. We listen to make sure he doesn’t go into his younger brother’s room to
wake him up . This doesn’t just happen once in a blue moon. This happens
every.single.night. Why does this happen?…
Sometimes I wander back into this blog and check out a few of my past posts. I read some of the wonderful blogs I used to follow regularly and contemplate writing here again.
So many things have changed in my life over the past few years.
The teenage years are...difficult.
I feel very alone in this raising a teenage boy with WHS thing. There is no one really to answer my questions, and I spend most of my days feeling as though my son hates me. I know he doesn't, but this is tough. Way tougher than I thought it would be.
So here I am.
Tracking my journey again.
It may help others.
It may help me.
But I feel as though there is so little support out there for parents who have teenagers with WHS...or any other disability for that matter.
I feel compelled to write.
So, I will eventually update this blog so it looks a bit fancier and with the times again (ha!).
But this is me. Raw. Unedited. Changed.
I am currently reading a book called 'Strong Mothers, Strong Sons', which is written by Meg Meeker. This is the beginning of my journey towards understanding what I could be doing better when it comes to supporting Ryley with the teenage years (this should benefit Braeden too!).Of course there is nothing in this book so far that relates to teenagers with complex disabilities ie. if they can't talk. However, I do feel as though there is some useful content. My plan is to start sharing my findings, and hopefully, start the process of developing some practical guides for parents of teens with a disability.
One thing I have been reminded of, is how easy it is for a mother to cause pain in her son's heart. While she (or I, such is the case), is busy focusing on how she is feeling about her son's behaviour , her son is slowly backing away because he doesn't feel as though she cares. I get this. It is so easy to make a young person's behaviour persona…