And just like that...

Routine is back.
I tentatively sent Ryley to school today, part of me feeling guilty, part of me hoping he was going to be ok. Turns out it was the best thing to do!
His teacher wrote that he seemed glad to be back with his friends. I bet he was! He pretty much hasn't been to school for a month!

He is down to just having Panadol in the morning and night now and is almost back to his old self I think. I can't believe he has recovered so quickly. He truly has more strength than anyone I know.

I feel so relieved at the moment. My stress levels have gone down a notch or two, and I feel like I can start thinking further than a day ahead at a time. Braeden and I had a very quiet day today, we went and fed the ducks at the Lake, we went to the bookshop and bought books, and we even managed to go to the nursery and buy some seedlings and seeds. Braeden really needed the downtime I think.

So, we slip back into routine, and hopefully it stays that way!

Comments

  1. AlisonJuly 12, 2010 at 7:16 PM

    So glad to hear things are quietening down for you guys and that Ryley has recovered so well from his surgery.

    ReplyDelete

Post a Comment

Agree? Disagree? Love to hear your thoughts! Thanks for stopping by!

Popular posts from this blog

Some things just never get easier

I have logged back in to write today as we come to the end of lockdown 3.0. I just saw in my unpublished posts my thoughts about lockdown 1.0. Hmmm. I might publish that one day!  Today's topic feels like something I have written about before. Over the past few weeks, Ryley has been undergoing assessments. These assessments are necessary in order for us to receive adequate funding under the NDIS.  Long story short, Ryley's last NDIS plan has failed to provide the funding he needs in order to participate fully in the things we had planned for his transition out of school.  The whole process has felt a bit messy.  It started with me not being listened to. This is despite my strong, knowledgeable-of-systems-and guidelines voice. No blaming or shaming here. It just is as it is.  However, for those that know me well, know that when you try and 'quieten' my voice, I will only speak louder. Especially when it comes to advocating and speaking for those that can't.  As expec
Keep reading

Blogging 101-how do I do this again?

Image
Sometimes I wander back into this blog and check out a few of my past posts. I read some of the wonderful blogs I used to follow regularly and contemplate writing here again.  So many things have changed in my life over the past few years.  The teenage years are...difficult.  I feel very alone in this raising a teenage boy with WHS thing. There is no one really to answer my questions, and I spend most of my days feeling as though my son hates me. I know he doesn't, but this is tough. Way tougher than I thought it would be.  So here I am.  Tracking my journey again. It may help others.  It may help me. But I feel as though there is so little support out there for parents who have teenagers with WHS...or any other disability for that matter.  I feel compelled to write. So, I will eventually update this blog so it looks a bit fancier and with the times again (ha!). But this is me. Raw. Unedited. Changed.
Keep reading

Defeated...for now

Image
At the moment, I am just surviving. I should have known it was only a matter of time before I fell over again and needed some help to get back up. Stress. Anxiety. Exhaustion. They seem to come hand in hand don't they? And I should have really just taken a moment when I felt the stress building up. I should have just said 'hey, I need a day or two to myself'. But I didn't. And here I am. I am ok by the way. Just in between sick kids, a sick me, work, a zillion extra appointments to somehow squeeze into my already full days...well...it all just became a bit much. Cue: Me in tears sitting in my Managers office. Thank goodness I have a supportive and wonderful workplace. She saw I needed time out and told me to take it. The worst bit of it all is the stupid anxiety that came back. For those that suffer from anxiety (whether it be a sometimes thing like me, or an ongoing disorder), it truly sucks the life out of you. My body just completely went into adre
Keep reading