*Disclaimer: Before you read this post, please note that I am not debating abortion and whether or not that is right or wrong. I am discussing the article published in a newspaper which is in regards to children who have disabilities. I don't wish to debate termination of foetus' who have a diagnosed disability, and this blog post will not reflect my thoughts on that subject in any way.
On the front page of one of our major newspapers was THIS ARTICLE. Go on. Have a read.
Somewhere in amongst the comments, they have published mine.
Basically the article is about two seperate families who have children with Down Syndrome. They have decided to sue their doctors for failing to tell them that they were carrying children with T21. They would have like the opportunity to terminate. Both families would have terminated.
They believe that the birth of their children was 'wrongful' and they are therefore suing for various reasons, one of which is 'psychiatric injury'.
As I have written in my disclaimer at the top. I am not here to debate the termination of a foetus who has been diagnosed via CVS or amniocentrisis.
I am going to share my thoughts, however, on the fact that these parents are saying that their child's life is something that they wish they didn't have.
I find it incredibly patronising that one of the families has commented "Don't get us wrong, we love our daughter. She's part of our family. We treat her like gold".
Uh huh. Yeah.
Well good for you.
Let's hope she doesn't watch the news or read the papers then shall we?
Most people would agree, that there are always risks with any pregnancy. There are a wide range of testing options and the information in regards to these are readily available. Pleading ignorance is probably not going to work unless you are illiterate and haven't sought any medical assistance, or if you have lived in a bubble your whole life.
Down Syndrome, like many other syndromes (such as WHS) are not readily picked up via a routine ultrasound. The only definite way to diagnose something that has a chromosomal origin is via a CVS or amnio because these are tests that give the baby's full chromosome arrangement. Unless you are carrying twins. Then the test isn't accurate at all.
My biggest issue is that for many parents who have children with a disability, it is the notion that our kids are worthless and using that awful word 'wrongful', is just a kick in the guts.
Children with disabilities are people. They have feelings. They understand.
Yes, there are more challenges. Sometimes, it feels like the weeks are just filled with nothing but battles.
How can anyone possibly say that they would have definitely terminated their child. Especially now that they are a living breathing human being.
Have these parents not bonded with their children AT ALL?
Personally, I think these parents need some serious counselling.
While we are on the subject of idjits in the media (sometimes I wonder why I even pay attention to the media), there was some comments made on a morning program a week and a half ago about children with disabilities and how they shouldn't be allowed in mainstream school. This apparent 'social commentator' made kids with disabilities sound like animals who should be locked up...she felt they were on a par with boys who apparently are all 'retards'.
WHAT THE FUCK?
There has been a Facebook campaign which has finally reached the newspapers, so now this woman has attempted to apologise by saying she once had a Down Syndrome boy work for her...so apparently she knows all about disability.
I feel like I am in a battle zone at the moment. What is it about disability that makes people think they are owed something? Why do people continue to disrespect people with disabilities?