Yesterday was one of the days I would rather not remember.
Our day began at 4:45am as we all had to get up and head to Melbourne to be at the RCH by 7am. We had to wait until 10:45am for Ryley to even go into surgery. The poor kid was starving and feeling horrible. I always fast with him, and I felt lightheaded and shakey, so I would hate to think how bad he felt.
Firstly, the dentist took xrays of Ryley's mouth. She came out to tell us what she had found. Sadly, Ryley doesn't have many adult teeth. They just haven't formed. So he will never have his top teeth ever again.
I think that has been one of the worst parts.
Realising that my little man doesn't even have the replacement teeth. I just feel so sad about that.
All up, Ryley had 16 teeth taken out yesterday. He has been left with his 4 canines (or fangs). They were the only teeth able to be saved.
He came out of surgery very badly.
Part of the reason was the pain.
Part of the reason was that despite me making sure there were warnings on everything, and me personally reminding the anaesthetist and dentist that he was on the Ketogenic Diet, they still gave him meds during surgery that contained sugar (including a drip).
To say I am furious, is an understatement.
The anaesthetist's response was "oops", when I had demanded his blood sugars and ketones to be done, only to discover his BSL's were high and Ketones were low.
Not. Good. Enough.
We also demanded more pain relief, which thankfully the nursing staff agreed with. We cannot fault the two nurses who cared for Ryley. They listened to us and they also advocated for Ryley very strongly.
Ryley had to be given Oxyconton because he is allergic to Morphine. This sedated him and eased his pain and distress significantly.
The nurses tried desperately to find us a bed because he really needed to stay overnight because of the pain, and because he had aspirated and had blood on his lungs. Scary stuff really.
Anyway, apparently the RCH was at level 3, or 105% capacity, so could only really put us in the ED.
We opted to go home and hope for the best, after all, we are pretty competent when it comes to caring for Ryley. We would have had to drive back to Melbourne if anything went wrong (ie. with his breathing).
So, armed with codeine we went home.
Thankfully, Ryley slept well through the night and woke up with a smile on his face (allbeit, a very toothless grin). He is absolutely amazing. Despite being still in pain, he has taken it in his stride and has coped remarkably well.
I have to make mention of Braeden too. It was a very long and difficult day yesterday, and would have been quite distressing for Braeden. He behaved himself (despite a few times when he ran for dear life) and it helped Ryley so much having him there.
It was a very traumatic day for all of us. But we are through the worst of it now and are just going to focus on Ryley's recovery.
I am completely overwhelmed by all the messages on Facebook. Thank you all so very much. Ryley is incredibly strong, and we are constantly in awe of how he copes.
Now we have to write to the tooth fairy...!