Little B.
Ryley giving Braeden his present
Awesome! Farm Animals!
Wiggles matching game (he had to do them all at once, not one board at a time!)
Wolf-Hirschhorn Syndrome-Some FACTS
Kids DO NOT usually die by the age of 2 years old. Yes, it can happen, but that is rare now. Most kids/adults with the syndrome live for well into their 30's, 40's and there is a lady in the US who is 62 years old. She is actually one of the first patients ever diagnosed. It is a chromosomal disorder which effects the short arm of chromosome 4. It is not caused by drugs, alcohol or poor eating throughout a pregnancy. It is not caused by poor parenting. For 80% of cases, it is something that has occurred spontaneously at conception and is not likely to happen ever again. In the remaining 20% of cases, one of the parents will have something called a balanced translocation. Without going into the genetics too much, it basically means that the parent has passed on the faulty gene at conception. This happened in our case. Something I had no idea of when I conceived Ryley. Seizures-85% of all children will have some sort of seizure activity. Most grow out of their seizures by the ag…
Happy Birthday Braeden!
ReplyDeleteLove the first photo - what a cutie!
ReplyDeleteHappy 2nd Birthday to Braeden ! Great photos of your gorgeous boys too !
ReplyDeleteCaroline