Just a quick update...
Ryley is much better today. Thank goodness! We were so worried about him. He hasn't been this sick in a long time. Hopefully he will stay well now as he has surgery coming up in the second week of holidays which we are not looking forward to.

Thanks again to the people who messaged me through here, FB or IRL. Thank you too for the offers of help (you know who you are!). David and I don't ever get a break and we truly feel it even more when Ryley is sick because we have to maintain round-the-clock care for him. Somehow we still have to juggle our jobs, and make sure Braeden maintains as normal routine as possible. David and I are both very grateful to our workplaces for being incredibly supportive and allowing us to have flexibility in our work times. This is the only way we can both continue to work (and therefore pay for the ever increasing costs associated with having a child with high medical needs).

I know most families who have a child with a disability can relate to the isolation that seems to come along as you progress through this journey. It is almost inevitable. It becomes even more obvious when your child is sick. If I posted something on Facebook every time Ryley was sick, I imagine people would become bored of me very quickly...I would probably become bored of me too.
Except I can't just press the 'hide' button, or ignore me.

David and I rely heavily on each other. We are the only ones in our team really. We can't just tag someone else and say 'your it'. No one else knows how to care for Ryley (apart from school), so it becomes crucial that we both learn to cope, because if one of us cracks, then life is going to get a whole lot more difficult.

So, anyway, we have nursed Ryley through another illness. A pretty bad one this time actually. We were so close to a visit to the hospital. But we got through instead. Ryley is an incredibly tough little kid. Despite being very unhappy, he is starting to bounce back again...just in time for school holidays.
Did I mention school holidays start tomorrow??! I am looking forward to slowing down the pace a bit and catching up with some friends before the dreaded 8th of July.


  1. So glad to hear that Ryley is starting to feel better.You and David do such a fantastic job with caring for both your spunky boys and to add work in the mix too.I really dont know how you guys do it.I take my hat off to you both..
    I will call later today or over the weekend to work out a catch up.I know my kids would love to see Ryley and Braeden..

    Take-Care Jules xxx

  2. I'm so glad he is feeling better. I hope you can all get a bit of a break in the holidays.

  3. I'm so glad Ryley is feeling better. I can definantly relate to your feelings of isolation, and I hope the school holidays bring a smooth recovery and lots of rest for you all.

  4. Thank you ladies. First day of school hols and David has taken the kids out for the day. I plan on recharging my batteries so I can enjoy the holidays!!


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