Thomas (Tom)

















Bethany

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Some things just never get easier

I have logged back in to write today as we come to the end of lockdown 3.0. I just saw in my unpublished posts my thoughts about lockdown 1.0. Hmmm. I might publish that one day!  Today's topic feels like something I have written about before. Over the past few weeks, Ryley has been undergoing assessments. These assessments are necessary in order for us to receive adequate funding under the NDIS.  Long story short, Ryley's last NDIS plan has failed to provide the funding he needs in order to participate fully in the things we had planned for his transition out of school.  The whole process has felt a bit messy.  It started with me not being listened to. This is despite my strong, knowledgeable-of-systems-and guidelines voice. No blaming or shaming here. It just is as it is.  However, for those that know me well, know that when you try and 'quieten' my voice, I will only speak louder. Especially when it comes to advocating and speaking for those that can't.  As expec
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Yeah alright. I better post ey? What's news? Well. Nothing much really. I wrote a couple of draft posts, but decided not to publish them yet. No idea why. Just feeling a bit concious about what I am writing on here. I don't have any reason to be feeling like that. Just feel like I am going through a kind of renewal period and I just don't feel happy with what I have written. *Yawn* Speaking of renewal periods (what the hell are they anyway?). After my massive traumatic plane experience (notice how dramatic it has gotten in the last week), I kind of feel like I need to reprioritise or something. Aside from the fact I probably need a dose of CBT in regards to plane flying, I could also do with a day at a day spa or something similar. Only in order to...er...renew myself?! Not really. A few glasses of champers did the trick. In all seriousness though, maybe it is the Supermoon that appeared this week. I know I am not the only one who feels a bit like they are s
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Makaton

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Last night I started the Makaton training course that my work was offering to parents and people who work with children with disabilities. I went along for a couple of reasons: 1. Because of my role as Social Worker/Family Service Coordinator, and 2. Because I really wanted to learn the signs for my own personal use. I am lucky that the Speechie running it let me slip in! So what did I learn, and what the hell is Makaton anyway? Makaton is an alternative form of communication that is mainly used to assist children with disabilities. It is not often used as the main form of communication, as the idea is that children can either use speech or some picture cards or even a communication device. Speech is such a difficult motor task and takes a lot of planning. Not only does it require your brain to send the messages to your mouth, but you also need your lungs to work, your tongue, your jaw and your mouth. Hard work when you have low muscle tone, seizures to contend with, and a body that do
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