I haven't really felt like blogging lately.
Not that I don't have oodles of interesting stuff to say (all my lovely readers know that of course).
Life, as usual, gets in the way.
Yesterday Ryley had what we think was another complex partial seizure.
15 minutes long.
Repetitive gagging this time, with vomiting beforehand again.
We didn't call an ambulance.
We didn't administer the midaz.
Well, to be honest, we just didn't know what the right course of action was.
That's the thing about seizures.
Sometimes it is better to just do nothing and see what happens.
Although others may disagree (you know, doctors and other medical people...).
But we know Ryley better than anyone else.
And we are well and truly trained in how to manage epilepsy.
Ryley responded a couple of times via eye contact during the seizure, so we felt he was ok.
We figured all the ambos would do would be administer oxygen and possibly the midaz.
And we actually felt he didn't need either.
But by the 10 minute mark we did actually decide to call the ambulance, but then he started to respond a bit, so we decided not to.
He came to and he went to sleep all while having constant myoclonic seizures.
Thankfully we can administer meds and his ketogenic meal through the PEG.
This morning he woke up full of beans as though nothing had happened.
Seizures are something we deal with on a daily basis.
Ryley is always going to have them.
But sometimes, I really just wish they would fuck off.