That's all folks!




After much thought, and with a heavy heart, I have decided to close this blog to the world wide web.
The recent passing of my brother has rocked me to the core.
He was the one who helped me set up my originial blog (some long time readers would remember ryley.net- I blogged there before blogging was even a 'thing'). Jacob was so far ahead of things in the online world and he was the one who encouraged me to keep writing (even when I didn't feel like it).
He is not here to read, comment, and encourage anymore.

So, for now, it is goodbye to Blog About a Bloke.

I have made so many wonderful friends through blogging, and have received so many emails from families all around the world who have a child with either a disability or Wolf-Hirschhorn Syndrome. These friends are the ones who have continued to be there, even though I am not blogging much anymore.

I have not yet fully decided what I am going to do with the blog.
I may continue to write in private, I may just print it all up and keep it somewhere, I may eventually start blogging here again.

Thankyou so much to all my wonderful readers. And thankyou to those who keep reading, even though I just can't seem to post anything right now.

I will be closing the Blog About a Bloke Facebook page at some point too.
Rybrae Farm will remain open as we move forward with that project. So feel free to follow that page (link is in the top right corner).

"Now the oak trees are swaying in the early Autumn breeze
The golden sun is shining on my face.
The tangled thoughts I hear a mockingbird sing
This whole world really ain't that bad of a place" 

 Rascal Flatts 'Why'




Comments

Post a Comment

Agree? Disagree? Love to hear your thoughts! Thanks for stopping by!

Popular posts from this blog

Some things just never get easier

I have logged back in to write today as we come to the end of lockdown 3.0. I just saw in my unpublished posts my thoughts about lockdown 1.0. Hmmm. I might publish that one day!  Today's topic feels like something I have written about before. Over the past few weeks, Ryley has been undergoing assessments. These assessments are necessary in order for us to receive adequate funding under the NDIS.  Long story short, Ryley's last NDIS plan has failed to provide the funding he needs in order to participate fully in the things we had planned for his transition out of school.  The whole process has felt a bit messy.  It started with me not being listened to. This is despite my strong, knowledgeable-of-systems-and guidelines voice. No blaming or shaming here. It just is as it is.  However, for those that know me well, know that when you try and 'quieten' my voice, I will only speak louder. Especially when it comes to advocating and speaking for those that can't.  As expec
Keep reading

Blogging 101-how do I do this again?

Image
Sometimes I wander back into this blog and check out a few of my past posts. I read some of the wonderful blogs I used to follow regularly and contemplate writing here again.  So many things have changed in my life over the past few years.  The teenage years are...difficult.  I feel very alone in this raising a teenage boy with WHS thing. There is no one really to answer my questions, and I spend most of my days feeling as though my son hates me. I know he doesn't, but this is tough. Way tougher than I thought it would be.  So here I am.  Tracking my journey again. It may help others.  It may help me. But I feel as though there is so little support out there for parents who have teenagers with WHS...or any other disability for that matter.  I feel compelled to write. So, I will eventually update this blog so it looks a bit fancier and with the times again (ha!). But this is me. Raw. Unedited. Changed.
Keep reading

Defeated...for now

Image
At the moment, I am just surviving. I should have known it was only a matter of time before I fell over again and needed some help to get back up. Stress. Anxiety. Exhaustion. They seem to come hand in hand don't they? And I should have really just taken a moment when I felt the stress building up. I should have just said 'hey, I need a day or two to myself'. But I didn't. And here I am. I am ok by the way. Just in between sick kids, a sick me, work, a zillion extra appointments to somehow squeeze into my already full days...well...it all just became a bit much. Cue: Me in tears sitting in my Managers office. Thank goodness I have a supportive and wonderful workplace. She saw I needed time out and told me to take it. The worst bit of it all is the stupid anxiety that came back. For those that suffer from anxiety (whether it be a sometimes thing like me, or an ongoing disorder), it truly sucks the life out of you. My body just completely went into adre
Keep reading