Thursday, February 28, 2013

THEY WON!!!




I want to take a moment to express my absolute gratitude for all of my friends and family who have voted, shared and joined the Vote 4 Elliott group on Facebook.
This whole experience has been amazing.
This is life changing for Liv and Elliott.
I think that every person who has been part of this has taken something really special away with them.
Helping each other, even perfect strangers is not hard.
It can be as simple as the click of a button on the computer.
It can be as simple as a smile.
It is as simple as love.

There is more to come for Liv and Elliott, of that I am sure.

And I believe, that for everyone who has been a part of this, there is something inside of them that has changed.



Wednesday, February 20, 2013

So you think you don't count?

Yesterday I posted about Olivia and Elliott and their quest to win a competition that would be life changing.

As I write this, they are now in the number ONE position.
This is because of the outpouring of support we have seen in the realms of social media.

I must admit, I have voted for various things in the past and thought: "What's the point?".
I have now seen with my own eyes just how much my vote does count (and yours, and yours and yours).

In less than a week, Liv has gone from no votes and a link on her Facebook page, to number one position and over 7000 people following her VOTE 4 ELLIOTT page.

We can't stop now. There is still 5 days of voting to go. We must keep her in that winning position.

So what can you do?
Vote of course!
Never again, at least, not in the Cressida will take you straight there!

This will change Liv and Elliott's lives.
By making your vote count, you are saying that we all count.
Supporting each other is one of the best things we can do in life.

PS. Are you new to the blog? Welcome! If you check out the About Wolf-Hirschhorn Syndrome Page you will find some links to our Aussie Charity: 4P Aussie Kidz, as well as the Wolf-Hirschhorn Blog.

I also wrote this post: Wolf-Hirschhorn Syndrome-Some Facts last year in response to some awful stuff being written about the syndrome.

I have to say, my faith in humanity has grown in this past week. I believe we all have the power to dream big and make things happen! Olivia and Elliott WILL win this-and it is all thanks to YOU.




Tuesday, February 19, 2013

Have you heard of Elliott yet?

I am currently watching something really huge happen in the world of social media.
I have seen this before.
But never actually been a part of something that involves one of my close mates.
It is pretty awesome to watch actually.

As long time readers of this blog would know Liv is mum to Elliott. Liv is one of the most generous and giving people I know. She is also a sole parent doing a wonderful job of raising Elliott.
Being a parent is hard.
Being a parent to a child with a disability is harder.
Being a parent to a child with a disability, while on your own, is harder still.

Liv recently entered a competition to win a brand new car.
Not because she would just like to have a fancy car.
But because she NEEDS a car she can convert, so Elliott can travel in his wheelchair.
The car she has currently is pretty old, and she is having to reach in awkwardly to put Elliott in and out of his car seat.
These type of transfers are not sustainable (as any good physio will tell you).
Basically, it will stuff your back.
Elliott has a wheelchair.
Just can't travel in it.

The competition ends 25th Feb and in a minute I will post the link so you vote.
There is also a Facebook page which already has over 4000 members!!!

I believe as a collective online community we can WIN this car for Olivia and Elliott.
I know we can do it.
She is already in 4th place.
Yep.
So so close.
This car is not a want, it is a need.

Thanks for reading and stopping by and (hopefully!) voting.
I so appreciate all the family and friends who have so far shared the link on Facebook and continue to vote.
It reminds me again how lucky I am to have so many special people in my life.

Links here:

Facebook Group: Vote 4 Elliott

Direct link to voting: Never Again, at least, Not in the Cressida

If you have trouble finding Liv's story, you can search for Olivia Sheen.
You can't vote from a mobile device is the only catch.

Ryley and Elliott last year at Ryley's 10th Birthday. 





Tuesday, February 5, 2013

Dear Ryley

Dear Ryley,

Every year we celebrate each birthday milestone, and somewhere, somehow we breath a little sigh of relief that we have made it through another year.

You are 11!! Where oh where has that time gone?
Each year I can't help but remember that moment when I first laid eyes on you. The instant I saw you I knew you were perfect, I fell in love with your whole being, which is why it was so difficult when the doctors started pointing out things that were 'wrong'. I have no doubt some would call it denial, but I refused to look at you as if you were anything less than perfect.
And you know what?
I have never thought any differently about you.
You are perfect to me (and your Dad and your little brother).

I see your frustrations.
I see your sadness sometimes.
I see your acceptance.

I see you Ryley, for who you are; for you are a beautiful kind soul, who loves unconditionally and continues to teach us about what that truly means.

What do I hope for you this year? I hope that this year we can continue to help you become independent. I hope we can listen better to you, and really hear you.
I hope that above all, you are happy.

We love you so so much. We are incredibly proud of you and look forward to another year.
Very pleased with his new ipod





Friday, February 1, 2013

Tears, for who exactly?

I keep opening up my blog and staring at the blinking white screen.
For some reason, I just haven't been able to put the words into a proper blog post.
So many garbled words keep jumping out on the page, as I stumble over the constant thoughts.

I want to write about issues, things that are bothering me, the kids, the stuff that no one else likes to write...but for some reason the posts that are half-written in my head seem to stay there.

*Shrugs shoulders*

Today, my baby started school.
Yes.
My baby started school.
Although, he isn't exactly my baby any more, and really, I should be referring to him as my youngest.
But there was a twinge of my heart today as he cried and clung to me.
I couldn't bear it really.
So, for his sake, I walked away and left him to cling to his father.
My tears flowed, and I could feel the other parents glancing at me, some with sympathy, some barely containing their own tears, some with amusement.
I didn't care.

Braeden was so excited about school, but once he got there and it dawned on him that he was going to be left in a new environment, with routines he didn't know and a whole lot of 'noise', he started to worry.
I validated his concerns:
"Yes, it is noisy isn't it?"
"Yes, I know you are hungry and don't know when you are allowed to eat"
"Yes, it is a new and different place to be isn't it?"
But it just wasn't quite enough.
It is definitely ok to cry. It is definitely ok to feel overwhelmed on your first day. And it is definitely ok to express that by letting the tears roll down your face.
He was fine, by the way.

Me?
Well I survived too.







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